Monday, August 11, 2008

United Mitochondrial Disease Foundation..

Added UMDF to my links...

An excerpt from the FAQ section below. This is EXACTLY what put me on the track of meta/mito dysfunction for Salamander a long, long time ago (the CHECK comment indicates that Salamander displayed (and on occasion still displays) the symptom):

"What symptoms could an undiagnosed individual [with mitochondrial disease] exhibit?
The child or adult may have seizures,
severe vomiting, CHECK
failure to thrive, CHECK
heat/cold intolerance, CHECK
poor muscle tone, CHECK
delayed achievement of milestones, CHECK
sever diarrhea/constipation, CHECK
feeding problems, CHECK
unable to fight typical childhood infections or repeated infections and fevers without a known origin. CHECK

A "red flag" for mitochondrial disease is when a child or adult has more than 3 organ systems with problems or when a "typical" disease exhibits atypical qualities."

Despite the above, no *mainstream* doc that I took Salamander to was even willing to consider the possibility for meta/mito disease...

Oh, and anybody else notice this, to me very unnerving, parallel?
"Every 20 minutes a child is diagnosed with autism"
"Every 30 minutes a child is born who will develop a mitochondrial disease by age of 10"
Too much of a coincidence for me....


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