Tuesday, July 01, 2008

The Joy of Autism??????

This very powerful writing by Marty Murphy I obtained from a blog called Recovering Matthew

And then earlier today I received a link to this article. And it made me profoundly sad for this young girl (and I couldn't help but wonder if the young lady's more recent regression coincided with another round of vaccinations or booster shots...). I'm sure I'll get *killed* for saying this, but I cannot find any beauty or joy in how this young lady is living her life.

And it'll be over my dead body that I will ever let Salamander be condemned to having to lead a life like that....


My Name is Autism.

Hello. Allow me to introduce myself to you. My name is Autism. Perhaps you know me or know of me. I am a condition, a "disorder" that affects many people. I strike at will, when and where I want. Unlike Downs Syndrome or other birth "defects," I leave no marks on those I strike. In fact, I pride myself on the ability to infiltrate a child's life, while leaving him or her strikingly handsome. Many people may not even know that I am there. They blame the child for what I cause him or her to do. I am Autism and I do as I please.

I am Autism. I strike boys and girls, infants and toddlers. I find my best victims to be boys around the age of 2, but any child will do. I like children and they are always the true victims, though I take hostage the others in the child's family as well. It is a bit like getting two for the price of one. I affect one child and infect the entire family.

I am Autism. I strike rich and poor alike. The rich combat me with education and therapy. The poor shut their children away and cannot afford to fight me. I am able to win in the lives of poor children more than I am of the wealthy, but I will try to take root anywhere.

I am Autism. I am an equal opportunity disorder. I like whites, blacks, Mexicans, Ukrainians, Russians, Poles, Slavs, Japanese, Koreans and Fins. In fact, I strike everywhere on earth. I know no geographical bounds.

I am Autism. I do not discriminate based upon religion either. I strike Jews and Christians, Muslims and Buddhists, Atheists and Agnostics, Hindus and Rastafarian's. I do not care what religion a person is or what beliefs he may hold. When I strike, there will be little time for any of that anyway. When they find me, they will question everything they believe in, so why would I strike any one group? I have affected followers of every religion on the planet.

I am Autism and I am strong and getting stronger every year, every month, every day, every minute, and every second. I am concerned that money might be alloted to combat me and my takeover of children, but so far I have little to fear. Some countries, like Kuwait, are spending quite a bit of money to assist those who I have targeted and some, like the United States, would rather spend money on such ludicrous things as discovering the number of American Indians who practice voodoo, as opposed to combating me. In an atmosphere as that, I can flourish and wreck havoc at will. In places such as that, I rub my hands with glee at the problem I can cause to children, families and to the society at large.

I am Autism. When I come, I come to stay. I take the dreams and hopes of every parent and trample them with glee. I see the fear and confusion in the eyes of my victims and I see the formation of wrinkles, worries and ulcers and the pain on the face of their parents. I see the embarrassment their child causes because of me and the parents unsuccessful attempt to hide their child and me. I see tears and the parents cry and feel the tears of their child. I am Autism. I leave sorrow in my wake.

I am Autism. I taketh and give nothing but bewilderment and loathing in return. I take speech and learning, I take socialization and understanding. I take away "common sense" and if I am allowed to flourish, I take away all but their physical life. What I leave behind, is almost worse than death.

I am Autism. I fear nothing except courage, which I thankfully see little of. I fear those who take a stand against me and attempt to fight me and bring others into the fight as well. I fear those who try to make it safe and easier for my victims in the community, and their families. I fear those who push ahead, despite the fact that I am in tow. I fear the day that I will be eradicated from the planet. Yet, I do not fear too much right now. There is no need.

I am Autism and I bet you know me or know of me. If you don't, you probably will soon. I am marching forward faster than I ever have before. I am looking for new children all the time. I dread the day I will be looked on with pity, or worse yet, understanding, for that day, is the day I will begin to die. But, I don't think that will happen for a long long time though, do you? In the meantime, I prowl onward, looking to cause pain and suffering wherever I go. I have so much work to do and thankfully, no one is stopping me.

Hello my name is Autism. Perhaps you know me or know of me .................................

written by: Marty Murphy

Marty Murphy is an adult with Autism Spectrum Disorder who was born and raised in central Illinois. With her personal insight and presentations on autism across Illinois, Marty has made a tremendous impact on how parent, teachers and administrators look at our children's futures.

2 Comments:

At 8:29 PM, July 01, 2008 , Anonymous Anonymous said...

I feel sick. The story of that poor girl. If only someone could get hold of her and implement some things... And she is regressing... so sad.

And the older sister with her bit about the diet, lord.

It's so damned sad.

 
At 9:25 PM, July 01, 2008 , Blogger Petra said...

I know!! It made me sad too, and then it made me angry. Really, what does this family have to loose at this point, they're already in hell. So why not give dietary changes a try and see what happens? Why not do a full immune system work up and see what you find? Why not do a GI work up? Why not screen for the various chronic bacterial and viral infections that our kids tend to battle?

I can't help but think about Barbara Fischkin's son Daniel. For many many years, Barbara focused on Dan's education, remedial training etc. Only recently she started implementing some biomedical interventions for Dan and she's seeing a difference. And Dan is 20 years old (!!, so really when he was diagnosed there was almost nothing in terms of biomed interventions). It is never too late, why not give some of these interventions a try?

I don't get it... this whole debate is so NOT about "Well, I don't believe vaccines caused my child's autism and therefore all this biomed stuff is voodoo hocus pocus." This debate should be about "Are there perhaps yet undiagnosed medical problems in my child with autism that, when treated, can improve their quality of life." (as we all know how damn quick the mainstream docs are to blame any and all legit medical problems on 'well, it's because he/she is autistic.')

Sjeesh louise..
(getting off soapbox now)

 

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