Sunday, November 30, 2008

Well....

Day 1 of 21 went GOOD. Boys and I had a fairly low key, NO DRAMA, going with the flow, we get done what we get done kinda day, which was much much MUCH needed. I took the boys to see "Bolt" this afternoon, which turned out to be a bit more intense that I had expected (and in a few areas a bit more intense than the boys can handle). Abandonment, kidnapping, getting trapped in fires; we sure had a lot to talk about and process tonite. But both boys have now settled in for the nite, and I think they'll be OK.

To my delight I am finding that I have much more energy left tonite than I have on a "typical' Sunday, which is good, as I have a few more things to get done before -I- can settle in for the night. And then tomorrow it's up again at 5 am, as Salamander has a session at Lindamood-Bell before school.

I had wanted to write about how Salamander did last week with his Lindamood-Bell sessions, but I didn't have time. He is doing well, and he is progressing well, and we'll see what this upcoming week's sessions will bring. Hope to have more time this week to write about the how and what...

Needing to do some writing here ....

Saturday, November 29, 2008

Quick Check-in....

We're all OK. Just busy..

and a few things happened that are making me think long and hard about a lot of stuff... which is forcing me to go places in my mind and emotions that I really don't want visit right now.... as it means that I need to face up to certain realities and realizations... when all I really want to do is to continue to hide behind the "I can't do this right now, there is too much stuff going on with the boys. This will have to wait."
Cryptic, yes.... Hope to have time and energy to write a blog post tonite...

Have to get back to managing the usual chaos... the day is slipping away from me and I need to make sure I have at least a 3 hour slot this afternoon to do more work with Salamander on a 5 paragraph writing assignment for school (it took us 3 hours (!!) yesterday to compose a little less than 2 paragraphs; first draft for the assignment is due by Monday....).

I really do feel bad, the whole Thanksgiving Holiday is turning into "school work, school work and more school work" for Salamander... He works so incredibly hard, and it is so unfair that the actual 'output quantity and quality' do not match up with all the effort he puts into things...

[but on a positive note, his reading is DEFINITELY improving...]

Thursday, November 27, 2008

Wishing You All

a happy and blessed Thanksgiving Day....

Leaving you for the day with this.

If time allows later tonite (and if I am not in a turkey tryptophan induced stupor ..), I'll try to post on all that happened so far this week.
Today so far has been very nice and calm. Both boys woke up in a very good place and have been actively playing together since 8 am this morning (which allowed ME to do a lot more cooking and prepping for the Thanksgiving feast that Salamander has ordered up). Their dad just took them to go do some outdoors type stuff for a couple of hours, so I'll make sure I have food ready by the time they get back.

The menu for today's feast?
Cranberry sauce - DONE
Turkey - IN THE OVEN
Cornbread Stuffing - ALL READY TO GO, WILL GO INTO THE OVEN FOR FINAL BAKING ONCE TURKEY IS DONE
Mashed Potatoes - ALL READY TO GO, WILL GO INTO THE OVEN FOR FINAL BAKING ONCE TURKEY IS DONE
Corn, peas - LEFT TO DO
Apple Pie - LEFT TO DO

Love, love, love....


UPDATED AT 9:45 PM.
BOYS HAD A REALLY GOOD DAY, which made for a nice, calm, quiet and relaxed day. There really was only one dip.. which was associated with the outdoors activities. Despite my caution that the boys were quite fatigued when they left the house and to not push the outdoors stuff too much, the boys' dad chose to not head my advise. Boys came home super tired and upset. But after a snack and watching a bit of a movie while I finished up on preparing the Thanksgiving feast, the boys bounced back. They both ate like PIGGIES. I updated the menu above with links to the recipes...

Wednesday, November 26, 2008

One More Thing...

A fellow warrior momma found this on a Facebook Group, it was originally written as a letter to Family and Friends for the upcoming Holiday Season, but I think this letter is "Required Reading" for anybody who is not around our kids on a daily basis and may have some trouble understanding why family gatherings can be hard for us, and why we do what we do when parenting our kids.

[and I just found myself thinking that this letter would be a good read for even those that ARE around our kids on a frequent basis and who still, after many years, do NOT 'get' that our kids frequently have little to no control over how they act, and that the kids do NOT do what they do to irritate the h e l l out of the other person..]

I hope that it helps "the outside world" understand a little bit what our kids go thru, on a daily basis. If everyone could spend 5 minutes in their shoes, the world would be a more understanding and tolerant and peaceful place! Compassion and understanding can be very liberating.

I know that my boys have taught me more patience, love, understanding and compassion so far in only a few years, that I could have taught them in my lifetime! They have changed the world for the better already, I can't wait to see what they have in store for the future!

Have a wonderful Thanksgiving; either with family and friends, or as 'just us'....


Dear Loved Ones,
I understand that we will be visiting each other for the holidays this year!
Sometimes these visits can be very hard for me, but here is some information that might help make our visit to be more successful. As you probably know, I am challenged by a hidden disability called Autism or what some people refer to as a pervasive developmental disorder (PDD) Autism / PDD is a neurodevelopmental disorder, which makes it hard for me to understand the environment around me. I have barriers in my brain that you can't see but which make it difficult for me to adapt to my surroundings.

Sometimes I may seem rude and abrupt, but it is only because i have to try so hard to understand people and at the same time, make myself understood. People with autism have different abilities: some may not speak, some write beautiful poetry, others are whizzes at math (Albert Einstein was thought to be autistic), or have difficulty making friends. We are all different and need various degrees of support.

Sometimes when I am touched unexpectedly, it might feel painful and make me want to run away. I get easily frustrated, too. Being with lots of other people is like standing next to a moving freight train and trying to decide how and when to jump aboard. I feel frightened and confused a lot of the time, like you would if you landed on an alien planet and didn't understand how the inhabitants communicated. This is why I need to have things done the same as much as possible.

Once I learn how things happen, I can get by ok. But if something, anything changes, then I have to relearn the situation all over again! it is very hard. When you try to talk to me, I often can't understand what you say because there is a lot of distraction around. I have to concentrate very hard to hear and understand one thing at a time. You might think I am ignoring you - I am not. Rather, I am hearing everything and not knowing what is important to respond to.

Holidays are exceptionally hard because there are so many different people, places and things going on that are out of my ordinary realm. This may be fun and adventurous for some people, but for me, it's very hard work and can be extremely stressful.

I often have to get away from all of the commotion to calm down. It would be great if you had a private place set up to where I could retreat. If I cannot sit at the table, do not think I am misbehaved or that my parents have no control over me. Sitting in one place for even 5 minutes is impossible for me. I feel so uneasy and overwhelmed by the sounds, smells and people - I just have to get up and move about. Please don't hold up your meal for me - go on without me and my parents will handle the situation the best way they know how. Eating in general is hard for me. If you understand that autism is a sensory processing disorder, it's no wonder eating is a problem! Think of all of the senses involved with eating: sight, smell, taste, touch AND all have complicated mechanics involved with chewing and swallowing that a lot of people with autism have trouble with. I am not being picky - I literally cannot eat certain foods, as my sensory system and or oral motor coordination are impaired.

Don't be disappointed if mommy hasn't dressed me in starch and bows. It's because she knows how much stiff and frilly clothes can drive me buggy! I have to feel comfortable in my clothes or I will just be miserable. A very smart adult with autism, has taught people that when she has to wear stiff petticoats as a child, she felt like her skin was being rubbed with sand paper. I often feel the same way dressed in dressy clothes.

When I go to someone else's house, I may appear bossy and controlling. In a sense, I am being controlling because that is how I try to fit into the world around me (which is so hard to figure out!) things have to be done in a way I am familiar with or else I might get frustrated. It doesn't mean that you have to change the way you are doing things - just please be patient with me and understanding of how I have to cope - mom and dad have no control over how autism makes me feel inside. People with autism often have little things that they do to help themselves feel more comfortable. The grown ups call it "self regulation" or "stimming". I might rock, hum, flick my fingers at my face, flap my arms or any number of things. I am not trying to be disruptive or weird. Again I am doing what I have to do to for my brain to adapt to your world.

Sometimes I cannot stop myself from talking, singing, or partaking in an activity. the grown ups call this "preservating" which is kind of like self regulation or stimming I do this only because I found something to occupy myself that makes me feel comfortable, and I don't want to come out of that comfortable place and join your hard-to-figure-out-world. Preservative behaviours are good to a certain degree because they help me calm down. Please be respectful to my mom and dad if they let me"stim" for a while, as they know me best and what helps to calm me.

Remember that my mom and dad have to watch me much more closely than the average child. This is for my own safety, preservation of your possessions, and to facilitate my integration with you tippies (what we autistic folk often call you neurotypical folks!) It hurts my parents feelings to be criticized for being over protective or condemned for not watching me close enough. They are human and have been given an assignment intended for saints. My parents are good people and need your support.

Holidays are filled with sights, sounds and smells. the average household is turned into a busy, frantic, festive place. Remember this might be fun for you "tippies", but it's very hard work for me to conform. If i fall apart or act out in a way that you consider socially inappropriate, please remember that I don't possess the neurological system that is required to follow "tippy" rules.

I am a unique person - an interesting person. I will find a place at your celebration that is comfortable for us all, as long as you view the world through my eyes!

Happy Thanksgiving Everyone...

I found this buried in an email form letter...Thought I'd share it....
Many, many blessings to all of you...


How to Observe Thanksgiving

Count your blessings instead of your crosses;
Count your gains instead of your losses.
Count your joys instead of your woes;
Count your friends instead of your foes.
Count your smiles instead of your tears;
Count your courage instead of your fears.
Count your full years instead of your lean;
Count your kind deeds instead of your mean;
Count your health instead of your wealth.
-Author Unknown

Tuesday, November 25, 2008

A Quick Ramble..

So I had this absolutely incredible dream much earlier this morning (just before being jolted from it by my blaring alarm clock). I won't go into all the details, but I'll share one bit. It involved me flying a small airplane... Airplane, you say? Now, what's the significance of that...

Well, back in my 'young and stupid' days, I actually took lessons to become a glider pilot. Made it up into (and safely down again) the blue yonder quite a few times. And absolutely LOVED it.
But due to finances, school committments and other 'life getting in the way' stuff, I had to give it up. Have wished many a times since, to get back into it (even though it would do incredibly bad things to my life insurance premiums).

I think in a way dreaming about that small airplane is part of me wanted to get back into some of that crazy sh#t I used to do (well, I still DO crazy sh#t, but of a very different variety), is me wanting to find some of that 'young and stupid' spirit back (she's still there.. trust me.. but most of the time I need to keep a lid on it).

One of these days, one of these days.. I almost bought myself a ring yesterday with the inscription "Believe in yourself and Magic will happen." Combine that with a bunch of other things, as well as this dream, and I think the Universe is telling me that it's time to make a few changes....

Da Suit...

has resurfaced!!! Check here, and here.

Great job Ang.. (but I share Kim's concern.. the therapy bills you're gonna have to foot..Oh my). I'll drop in later on your blog to leave a comment...

Monday, November 24, 2008

It's Gonna Be a Crazy One..

Very busy week ahead.. as due to the Thanksgiving Holiday I need to cram in 2.5 days what I typically cram in 5. Not pretty....

So I'll post if and when I can....

(oh, anybody see "24 Redemption" last nite? OMG.. I missed that show.. OK, I'll be honest, I missed a certain character... Man, I could use a little "Jack" in my life...now there's a guy you can count on....)


Oh, few quick things about this weekend. Salamander lost a baby molar on Saturday afternoon, so there was much celebration here and the tooth faerie paid him a visit (yes, I know, he is VERY late with switching to permanent teeth.. well, that's "developmental delays" for ya.. He didn't switch all his front teeth until he as about 9.5.. and then NOTHING happened for a whole year. The good news? While his baby teeth were/are a mess, his permanent teeth are coming in beautifully).

Potatey was a little beast pretty much the whole weekend and he did several very nasty BMs.. so something's up with that one...

Salamander once again woke up very very tired this morning. I got to get this fatigue (most likely mito related) under control. I am going to start the heavier mito guns (L-carnitine, CoQ10) on Wednesday. I KNOW he needs these badly, and because he needs them so badly, they will also trigger detox. So I figured I start these just before a 4 day school break, so if things 'go south', at least I'll be able to help him stay comfortable.....

Sunday, November 23, 2008

Last night's dinner...

Crazy busy day ahead, so this will have to do for now...

Saturday, November 22, 2008

Woohoo!!!!

Salamander achieved his Jr. Archer rank today in archery!!! I am so incredibly proud of him!!!
This is really turning out to be 'his' sport.. and oh my, the things it does for his eye/hand coordination and visual motor tracking skills.

He's asked Santa for his own bow for Christmas... I think Santa will deliver on this wish (don't know yet how, but somehow he/I will.....)

Friday, November 21, 2008

Must NOT

fall 'off the wagon' and go to 'reactive' place...

THUD... Crap.....

Another Cool Thing..

that happened today...

Salamander is not a big fan of silly rhymes or non-sensical words.. It's part of his wiring; things are black or white. He's learning about grey, is getting more comfortable and proficient in identifying grey. But actively applying grey and extending that to rhymes or words? Not so much.

Until today that is. As part of the phonemic awareness drills, a lot of nonsense words are introduced. It's all part of pattern recognition and 'brain' training. Salamander struggled at first (he's a picture thinker; there are no pictures for nonsense words..), but definitely got more proficient as the week progressed.

On the drive back to school today, he started this game where I needed to give him random words (nouns, adjectives) to insert into a story he was making up. Of course I pick whatever words are coming up in my head. And Salamander is taking the words and putting them in his story.

We ended up with an absolutely hilarious and non-sensical story; we laughed ourselves tears (I almost drove off the road I was laughing so hard..). And not once did Salamander get upset with me for picking words that resulted in something that "does not make sense, mom."

[he wrote the story down and took it with him to school. I'll post it as soon as I get my hands on it]

My child is discovering the joys of "playing with words"....

Here's the story.. Warning, it's not entirely PC...

What To Do When You Have a Cold
You can always tell when you're getting a cold because your nose will feel stuffy and you will have a shoe ache..The first thing to do is to take a couple of hiccups. Then get into your car and rest, and drink plenty of soda. Sometimes it's fun being sick. Food is brought to you on an elephant so you can eat and watch TV, and your temperature is taken by putting a lollipop in your buttocks [this is the part where I almost ran off the road..LOL].
If your temperature goes over 1,000 degrees, a doctor should be called. He will thump you on the pillow and say "Pee!" [hey, the author is an almost 11 year old male]. Then he will ask you what animal you ate the night before and x-ray your stomach. Finally you will give you disgusting advise on how to get well. If you do just what he says, you'll feel worse in no time at all.

OK..

where to start?

OK, the [insert pic of me banging my head against the wall] part first. Last nite was rough. Salamander had a really tough time. Not entirely surprising, as he has been working SO incredibly hard all week. And Thursday evenings are typically a bit more rough, as the boys are tired from working hard all week, but they can't 'let go and slow down' just yet as there is still Friday to get through. This is exactly the reason why I typically make Thursday evenings "movie nite", where the boys can just chill and watch a movie while they are eating their dinner (that doesn't happen on other week nites.. so this is a treat). Especially Salamander just doesn't have a whole lot of energy left on Thursday evenings to actually verbally communicate, so I am perfectly cool with a little 'switch off and recharge' time.

What happened last nite? Not sure. Well, I have my suspicions. Salamander was tethering on the edge of an escalation, and a certain someone, through his actions and then lack of actions, added 'oil to the fire'. BOOM.. Flash Burn... Incredible, that after so many years of seeing how I respond to Salamander when he's 'on edge', and the actions I take to talk him 'off the ledge', that none of this has registered or rubbed off on that certain someone...
Ah well, Salamander stabilized as soon as I got him settled in front of the TV for a movie and got some food into him. And by bedtime he was doing better.

[I did some processing of the whole 'what the F just happened' later that nite and again this morning. Mistake I made is that I went to my 'reactive' place, not reactive to Salamander, mind. Reactive to the (non)actions of that certain someone. And I should have stayed 'neutral'...
More here]

Now the really GOOD stuff. Salamander completed his 5th 2 hour block at Lindamood Bell this morning (we'll be back there next week Monday, Tuesday and Wednesday) and he is doing really really well. He has been progressing faster this week than the staff had anticipated based on his original assessments (and yes, I realize it's only the first week...], and he was more solid in some skill areas than expected. Which is GOOD news. As that means that most likely all skills needed to become a proficient reader ARE intact (I think I can now officially retire my 'does he have dyslexia on top of everything else' concerns). What needs work is mastery, consistency and automaticity.

I have also seen some truly amazing changes in his ability to retain information in his short term memory (which is very weak). At the start of the week, he could not hold the printed image of a 3 to 5 letter word in his mind for more than a couple of seconds. This morning I watched him 'hold on' to the image of a 5 letter word for quite a long time, all the while responding to instructions to delete/add/move around letters and letter groups. So his endurance is improving.

Also I have seen his fear of failing diminish. Of course he is getting a ton of one-on-one attention and a ton of positive re-enforcement while he's at the center. And I am seeing his confidence and his 'oh wow. I CAN do this stuff' grow in leaps and pounds. He's much more willing to try to figure things out and to stick with it for a while, even if in the end he cannot yet figure it out. He is positively GLOWING while he's there. And I cannot even begin to articulate how much of a trip it's been for me to see my 'oh my god. I hope I know how to do this. What if I don't know how to do this. What if I make a mistake' kiddo start to change into a 'OK. I know how to do this. First I try this, and then I try that. And I can take my time and I'll get there' kiddo.
The staff is getting a real kick out of how he's 'blooming' too...

At home, he is definitely more willing to try and read independently and to not give up at the first 'difficult' word. And while I do not mind reading to him (not at all; I LOVE reading with him), he IS in 5th grade, so he should be able to read by himself for about 10 - 15 minutes without help. I have more confidence now that we will get to that point.

In all, this has been quite a week. And I can't wait to see what next week is going to bring (I DO need to make sure I spent solid time with Potatey this weekend; he feels a little left out, and has been acting (out?) accordingly the past 2 days ..).

Thursday, November 20, 2008

Dogs and Spectrum Kiddos...

I have heard (and seen with my own eyes more than once) what a service dog can do for a child with autism. And a fellow warrior mom and blogger is working hard on making the dream of a companion/therapy dog possible for her amazing daughter.
Please go here, and once you've read the story, please consider a contribution to making Riley's dream come true...



I have considered pursuing a service dog for Salamander off and on over the years...
He has an amazing affinity with and for the dogs that pass through the neighborhood. I will also never EVER forget the absolutely incredible interaction I witnessed between Salamander and the alpha female of a pack of timber wolves (there is a preserve somewhere in Delaware that we visited during a family vacation; the vacation was otherwise an absolute and horrific disaster as this was just before the light bulb went off that not all was well with Salamander, and he was seriously escalating at that point).
Even the preserve keeper just stood there with his mouth hanging open - he had never seen this particular wolf respond this strongly to a child and vice versa.

I am just not ready to make the commitment to a service dog for Salamander at this point in time. But I will probably revisit next summer...
There is an organization here in Mass. I have met with and spoken with representatives, and very happy clients of this organization at a couple of autism conferences.

Okay.. off to my paying job now...

All Grown Up.. And Where to Go??

Another crazy busy day ahead, and I need to get some stuff up on my other blogs.. (check HERE, and here)

So leaving you with this for now..

Wednesday, November 19, 2008

Just to let you all know that we're doing well. I lost internet access shortly after yesterday's 'slow as a slug' post, and only just got back on.

Salamander completed his 3rd session at Lindamood-Bell today and he's LOVING IT. He can't wait to get there, and as soon as we walk in he is ready to work. No stalling, no avoidance behaviors, no excessive talking - he has found himself a cozy nook in the loft of the building (the center is set up like a big cozy family room in a farm house; all kinds of fun nooks and crannies that the kids can pick from to do their work in), and he gets 'in the zone'. He didn't even notice me leaving today (as I had to step out for a bit in an attempt to find internet access somewhere).

He is working FAST through the various assignments - some of the skills we are working on are typically taught in 2nd and 3rd grade, and Salamander obviously missed solidly mastering these skills the first time around. And while it is hard work for him, things are starting to make more sense for him. And oh my, that whole piece of being able to visualize a word in your mind? I had the pleasure of watching that process start to take place.

I spoke with the center director for a bit as to how Salamander has been doing so far, and all the therapists that have worked with him so far already are heads over heels in love with him. And they are very impressed with how hard he works and how motivated he is. The center director commented that Salamander has two things going for him: that insanely high verbal IQ of his and the vocabulary to match, and NO behavioral issues (you hear that world-at-large? My Salamander is doing school/reading work that is very hard for him WITHOUT behavioral issues!!!). And because the therapists don't have to spend time managing behaviors, they expect him to progress fairly quickly (if he stays this focused and motivated).

COOL!!!

Salamander commented today, as we left: "Mom, these ladies are really good teachers!". I'll have to tease out a bit more exactly what he meant by that. For now he obviously feels comfortable there; and oh my, every time he collects more 'stones and points' for his score cards (he gets to trade completed score cards in for prizes at the end of the week), he positively GLOWS, his grin lights up the room and he grows 2 feet taller. Think Cheshire Cat; that's how big he is smiling!!

At home I am noticing some subtle differences in his approaches and feelings about reading too. He is shifting from 'reading being a chore and something to be avoided at all cost' to 'reading is fun, reading is something you can do FOR fun."

I so hope this continues.. he needs that boost to his self confidence. He needs to realize that he is NOT stupid, but that that big brain of his requires different approaches. That's all.

We have two more sessions this week; tomorrow and Friday. And on Friday I'll be able to sit in on part of a session, plus I'll be sitting down with Salamander's managing therapist to talk about what's been happening this week. I am looking forward to it.

[one kinda sad thing did happen when we left the Lindamood-Bell center today. Go here]


OK, gotta get out of the house. It's time for me to get to one of my client's and get several 'paying' work hours in.

Tuesday, November 18, 2008

OK..

So who in my neighborhood is pirating off my internet signal today (I DO have a password protected network)...

My access is as S L O W A S A S L U G

It's driving me NUTS!!

[boys had a really GOOD day yesterday; a really good day. And that despite a really busy and intense schedule, especially for Salamander..]

Monday, November 17, 2008

First Impression..

Well, Salamander attended his first session at the Lindamood Bell center today (poor kid had to get up at 6 am, so we could leave the house at 7.15 am to get him to his 8 - 10 am session). He had a great time!!!! He is working so HARD, but he seems to enjoy doing the actual work. Of course these sessions were just the 'warm-up stuff', to find out where he currently is at with his phonemic awareness and processing, so we'll have to wait and see if the 'this is FUN, mom' perception lasts. Time will tell.

The program is set up to provide weekly progress reporting sessions to the parent (that would be 'moi'), so we'll see what they have to say on Friday morning.

We're going back for another 2 hour block tomorrow afternoon.

[and I got him to school by 10.30 am this morning, just as the bell for morning recess rang. PERFECT timing]


[and then just now, this parent article showed up in my inbox. Oy. Reality Check. But reading these experiences does NOT mean by any stretch that I am giving up on my hopes that Salamander one day WILL be able to successfully attend the college of his choice. Do we need to manage expectations (local community college vs. big campus in a place halfway across the country), take it one step at a time? Absolutely. And we definitely have some time to work this all out]

Sunday, November 16, 2008

Two Writings

by the wonderful Michelle O'Neil struck a real chord today...Here and here

Let's just say I can relate.. Big time..

Wauw...

This is going to be a quick collection of a bunch of interesting things that happened yesterday.

###

Remember that new reading instruction/intervention I started with Salamander last weekend? Well, last nite, after I got him started on his daily 5 - 10 minutes, he ended up reading INDEPENDENTLY, TOTALLY FOCUSED for 30 minutes. And all the while Potatey was bouncing through the house and running in circles around Salamander, but he never ONCE took his eyes of his book or stopped the tape. He was in his Zone!!!!

[and this is exactly what I was hoping for; I want him to get to a place where reading is a fun thing to do, not another chore]

We'll see if it happens again today.

READING STREAK CONTINUED: HE ACTUALLY READ FOR ABOUT 35 - 40 MINUTES (ABOUT THE BERMUDA TRIANGLE.. RIGHT UP HIS ALLEY.. LOL). NEVER ONCE LIFTED HIS EYES OFF THE BOOK, DESPITE TOTAL MAYHEM SURROUNDING HIM. WHEN HE'S ON, HE IS ON. I THINK IF THE HOUSE HAD FALLEN DOWN AROUND HIM, HE WOULDN'T HAVE NOTICED. IT WAS SO INCREDIBLY COOL TO WATCH HIM BE SO ABSORBED IN A BOOK.....

####

A spelling test came home in Salamander's school folder, and the score is NOT too good. I'll share the misspelled words with you [proper spelling in brackets] - does anybody still doubt that this child has phonemic awareness/processing issues??

whoes [whose]
anwers [answers]
thier [their]
mucic [music]
buitiful [beautiful]
freinds [friends]
explan [explain]

And trust me, he and I have practiced all these words thousands and thousands of times. They just don't stick [he is not 'seeing' the letters/words in his mind; he is a picture thinker]

I won't get into the note that came home with this spelling test and what Salamander has been instructed to do to 'learn the misspelled words'. It's along the same ole 'write it down again and again and again' line, which DOES NOT HELP Salamander AT ALL. Yeah, he'll remember the spelling of these words for about an hour after we complete the 'write it down' exercise, but then they'll be 'gone' from his memory again and he'll make similar (or completely different) mistakes.

#####

I started reading the teacher's manual for Lindamood-Bell's Seeing Stars program. There is a conversation between an instructor and a student relayed in the 3rd chapter of the teacher's manual. And OMG, the conversation going back and forth between instructor and student is almost verbatim a conversation Salamander and I had sometime yesterday. I'll relay the conversation when I have a bit more time. But if I ever needed additional confirmation (my mommy gut has been telling me from the moment that I started reading about the Seeing Stars program) that Salamander could benefit tremendously from this program, I got it yesterday.

Saturday, November 15, 2008

Lexia Learning...

Anybody familiar with the Lexia Learning software? The sped department person and I had a discussion around the suitability of this software to help Salamander with his reading challenges. I spent some time this afternoon reading the website. It DOES seem like it would target some of Salamander's deficits....

[and I know that our town has this software available at the schools..so I should be able to get use of this software written into Salamander's IEP..]

Rant HERE..

Well, Well, Well...

The UK is taking action to ban certain food additives/colorants, as research has supported a link between these food additives/colorants and the potential for developing ADHD.

Good for them!! Let's hope the US (or just parents in general) catch on too. There is absolutely no reason why your child's food should be neon pink, bright orange, or magenta. Food should look (and taste) like food. Period.

I have bumped into tons and tons of people as of late with preteens and teenagers on all kinds of meds to combat the symptoms of ADHD and other neurodevelopmental challenges. And really, it is not my place to question another parent's decisions (although of course I get questioned plenty on my decision to as of yet NOT pursue medication for Salamander). We all do what we have to do.

But I wish that people would be a little more willing to consider food as a potential contributor to their child's challenges. At least TRY to remove all the artificial crap from your child's diet. And as an extension of that, DO take a look at this really great and easy to read book about the Feingold Diet. The benefits of making, relatively simple, changes to your child's diet far, far, FAR outweigh the drawbacks.. Take my word on that one...

And no, feeding your child a 'clean' diet is NOT more expensive than feeding them SAD (Standard American Diet). Give up on wanting to buy everything 'in a box or can', cook from scratch and cook in batches, replace 'treats' with fruits and vegetables, stop buying soda and juices and have them drink water. Get creative, recruit the kids in cooking (mine LOVE to participate in kitchen experiments..) and plan ahead. It works!!

Now THAT

was one crazy, roller coaster day yesterday. What follows is kinda of a raw 'dump', I'll probably edit later for clarity.

It started (after I got the boys through the morning routine and on the bus to their respective schools) with me composing a long email to Salamander's school outlining the reasons why I am starting him for remediatory reading (and math) interventions at the Lindamood-Bell center on Monday. I also outlined what his schedule will look like until the end of this calendar year, and that, yes, the Lindamood-Bell instruction will take place during part of his regular school day (as I am hesitant to add intense interventions AFTER the end of his regular day, as he is POOPED by the time school is done). I had not expected a whole lot of reaction from school (after all, during the past IEP meeting, while lots of other great and positive things DID happen, they did not seem to look at Salamander's struggles with reading and math quite the same way I do, as technically he is not failing YET; and I have certainly done my own, private, interventions before. So school knows that I don't exactly sit and wait for things to 'fall in my lap'. - I go off and get Salamander what he needs. Period).

But school did respond, at around 3.35 pm on Friday afternoon. More specifically the sped department responded. And oh what a conversation it was.

I realize that I will need to compromise, and that I will need to move the bulk of the Lindamood Bell instruction to after school hours (Salamander would miss too much school otherwise, and while I am primarily concerned about the amount of instruction he'll have to make up for, the school department is looking at it from a 'is he in school for sufficient numbers of hours every day, and if not we are dealing with tardiness/truancy issues' perspective). But the person from the sped department 'got' that I am pursuing these interventions for very well substantiated and documented reasons. We talked about several reading interventions that are available through Salamander's school and that could be offered to him as part of his IEP services. I received a promise that the person I spoke with would do some investigating and researching on Monday. I promised in return that I would rework the current Lindamood Bell schedule to make sure the bulk of the instruction would take place outside of school hours. And we will reconnect either on Monday afternoon or on Tuesday morning (trust me, I'll be on the phone again Monday afternoon).

Now considering what the sped department person told me, I need to connect back with Salamander's school asap on the reading (and I am thinking math too) goals as written in the IEP that was just issued. They are just not detailed and specific enough, especially in terms of specifying what instruction methods will be used to get him to grade level (and especially in reading there is quite a gap) by the end of 5th grade.

Yup, I have lots to think about and sort out.

In between writing that email and getting that call was the 'usual' stuff, involving a trip to one of my client's, several meetings at my client, racing back home to grab a few groceries and making sure I got home in time for the school bus, etc etc etc..

To say that I was 'fried' by the time the boys were in bed was putting it mildly.

I'll be honest, the conversation with the sped department wasn't an easy one. It started out quite adversarial. But about 10 minutes into the conversation, when the sped department person realized that I have very good reasons to pursue these interventions and that I too am concerned about the amount of school Salamander would/could be missing, but that a tardy/truancy rule will not stop me from seeking out those interventions that I believe will benefit Salamander the most, the conversation shifted. The sped person realized that [the person] did not have all the relevant information regarding Salamander's neurological challenges and his history. And I explained that my entire focus will always be on making things work (I am not interested in pissing contests), that I am very grateful to all that Salamander's school TEAM has done for him so far, but that I will make sure Salamander gets and continues to get what he needs to be the best he can be. And of course, flexibility and 'give and take' are part of the process of getting to the best solution. The best solution for Salamander, that is...

It'll be interesting to see where this conversation goes next. I'll keep you all posted..

Thursday, November 13, 2008

Georgia School

works from the premise of meeting students of autism where they are at (nice piece on Good Morning America yesterday morning).

Taking care of their emotional needs first.. it's what we autism mommies do instinctively.. But it's oh so hard to get the 'outside' world to do that too. This school seems to 'get it' (not surprisingly, as the founder is a father of an young adult with autism)...

Interesting Observation..

I met the mom of one of Salamander's class mates at a town meeting last week, and as we got talking, we came to the realization that our kids have similar decoding, phonemic awareness, reading speed/fluency issues.

She shared with me a reading intervention she had started with her child at the beginning of the school year and that she noticed that her child's reading had become much more fluent and that he was enjoying reading books a lot more.
What did she do? She started getting books on tape or CD for her child, as well as the actual book. And at bed time, she has her child read from the book while listening to the book on tape/CD through head phones.

It's so simple that it's brilliant!!! Salamander's phonemic processing (connecting letter blends to sounds, and vice versa) is impaired. While his phonics are strong, recognition of vowel blends, consonant blends and, as an extension of that, sight words and words that are used a lot is poor. He simply does not 'recognize' these.. and he is not connecting these to sounds (and as an extension of that, he has great difficulties with spelling too). Basically the visual processing and the auditory processing systems are just not linking up the way they are supposed to.

So I started this past Sunday with having Salamander read from a book while at the same time listening to the book on a tape. We are currently at a very slow reading rate (90 words/min), and that's OK. I rather start slow and have Salamander be able to keep up, than start too fast and have him get frustrated.

He resisted me like crazy on Sunday. Did NOT want to do it (which typically happens at first when we are working on an intervention that uses auditory and visual processing systems together -that's where significant deficits are, so it's incredibly hard for him). But I got him started, and he managed to read/listen for about 7 minutes (about 4 pages) before he got completely exhausted (and I could see the exhaustion on his face..).

We weren't able to do this on Monday and Tuesday, but I did have him continue last nite. And to my delight, he simply strapped on his headphones, opened the book, hit play on his cassette player and read 15 (!!) pages. On his own. No fussing. Totally focused.
He said to me afterwards; "Mom, I only lost my place a few times. But I was able to find it back as I was listening.' and 'Figuring out unfamiliar words is getting easier, as I have the voice to help me."

Of course, having only done this twice, it's too early to tell whether there will be a substantial longer term impact. But as Salamander is starting to see the benefits of reading this way, I think he'll continue to work with me on this and we'll be able to build up his phonemic awareness and his reading stamina (as well as his confidence).

Yes, yes, I realize, it's one more intervention (and there will be more as we are starting the Lindamood-Bell program next week) to build into his, already very full, day. But I have to do what I can to help him become a more confident and proficient reader (and speller)..


On a totally separate note, as I have lots of stuff going in my life that I cannot always be 'direct and open' about on this blog (as this one is in the public domain and anybody can get on and read stuff), I started a private blog. I am willing to give people access, but you'll have to email me and ask...

Wednesday, November 12, 2008

Ah Sh#t...

So this is what the American Dream has come to...

Kim, I am so so sorry.... and all of this is so unfair. Hang in there, hang in there.. Sending lots of positive vibes into the Universe for you..

Fu-ull Mooooon...

Once again... tomorrow nite officially (great - full moon on the 13th.. double kookiness is now a guarantee..).... And things are NUTSO out here.... Took me almost an hour to get Potatey to go to sleep. Salamander is still spooking.. And this despite the fact that both boyos are BEYOND tired...

(and I am tired too and still feeling crappy... -I- want to go to sleep!!!!)

Unbe'effin'lievable...

Remember my DHL domestic has gone bust post??
Well, strike any and all comments I made about EZ return ship labels being honored until next Monday. The pick-up I had scheduled for a UTM for Potatey never got executed. And I didn't realize that the sample was still sitting on my front porch until last nite!! I am not mad at DHL.. I mean, who can blame the former employees.. they were 'sent packing' overnite...

I've spent the past 1.5 hours making alternate shipping arrangements (yup, out of my own pocket.. ) with FedEx.. And I just hope it gets picked up today (and that the sample will actually get to the lab by Friday), because if that sample ends up sitting around much longer I may as well not send it to the lab (TG it's a metals test and not an amino acid or metabolic parameters test..)

I'll have to hold off on ordering more test kits for the boys until I've had a chance to talk withe various diagnostic laboratories to figure out the best interim shipping method.

Ugh...

P.S. Yes, I need to get the "Our Sleep Study Adventure" post up. I was too fried last nite.. and I am not sure how far I'll get on it today.... That bug we were dealing with over the weekend is back with a vengeance (right now only for me, TG) ... I have to do what I can to get 'over it' today as I cannot afford to be 'down' tomorrow and Friday....Too much going on..

Tuesday, November 11, 2008

We're Back Home..

Salamander was a real, real trooper. He handled it much much better than I had expected.. Personally, I think he handled the whole experience much much better than an 'average' 10 year old would have.

Results should be available in 1.5 - 2 weeks (so now the waiting game begins..). I learned a lot, just be sleeping next to him...

I'll do a more extensive update (both on the procedure itself as well as my thoughts and observations) when I have more time later today...

Me? I am wiped.. I am having a bit of a 'coming off of the adrenalin rush' reaction now (I tend to have my mini 'crash' AFTER all is said and done, as I sure cannot afford to fall apart while stuff is going on..)

Another

Beautiful Letter to President-Elect Obama.

I sure hope this one (and any future ones) actually get to him and that he 'gets it'....

Monday, November 10, 2008

Holy Sh#t..

I admit it.. I DO live under a rock... especially these last several weeks..

But man, I had NO idea that DHL (who I have been using to ship the boys' pee and poo specimens all over the US) is suspending all of its domestic shipping business AS OF TODAY (if you have test kits sitting on your shelf with the EZ ship return label, DHL will honor those until 11/17/08)!!!!

9,500 people are loosing their jobs.. including the very nice customer service rep who talked me through the shipping process for this week and who gave me some great suggestions on how to ship AFTER 11/17.

9,500 people unemployed. Just like that.

And here I am worried about a sleep study.. seems silly now, doesn't it?

P.S. The above was what I was told verbally by the customer service rep I spoke with at around 4 pm. The official DHL press release tells a different story...

A Little Scared...

Well, the information package from the hospital never arrived... But the hospital called earlier today to remind me of our appointment, so I took the opportunity to ask all my questions, to ask all of Salamander's questions...

The young lady I spoke with was very sweet, and some questions she could answer. Those she couldn't she wrote down on Salamander's chart. With a reminder to me to ask these questions again when we get to the hospital tonite...

When Salamander comes home from school, I'll try to find some quiet time, just with him so we can talk about tonite (I could save that for the car ride tonite, but it'll be dark by the time we get going. I'll be driving in unfamiliar territory and my night vision is quite poor. I won't be able to drive, find my way AND have an intense conversation all at the same time].
And I'll do my best to answer all his questions. And some questions I'll be able to answer now. And some I won't - some answers will have to wait until tonite.

And Salamander will cry, as he is scared and anxious. And I will hold him and tell him that I understand. And I will tell him, again, that I will be with him the whole time. And that we will get through this, together, like we always do.

But can I tell you a little secret? I am scared too... My mommy gut sense alarm has been acting out all day going: "What if.. what if.. what if.."
Shut up mommy radar. I get it. I do. That is why we are DOING this test....

[I'm going to take a shower before the boys get home from school.. hopefully that will help me get a little more grounded... And yes, I know, it's 'only' a sleep test ... remind me to tell you about another time when somebody, not Salamander, went in for 'only a sleep test'...)]

I Messed Up...

Royally....

In the craziness of last week, this weekend and today (Salamander is 'out of his mind' anxious about tonite's sleep study) I dropped one of my many scheduling balls. I wasn't as clear as I should have been on whether or not Salamander was going to start his reading/math remediation therapies today. So the wonderful folks at the outside therapy place were waiting for Salamander and me this morning, and we weren't showing...

I feel terrible about this. I am all about clear and open communication, and I do not like to 'jerk people around'. I can't stand people that make appointments and who then show way late, or who don't show at all.

Of course I have apologized profusely. Explained the circumstances...
And yes, I am human. And yes, even the best jugglers drop balls. But I am still feeling like a total stinker....

I know, I know.. I need to be kind to myself.. move past this... and focus on getting Salamander through this evening/night in one piece.... But how exactly do I move past this screw-up??

[one approach that has always worked for me is to get busy.. I have a ton of things to get done.. time to get 'up and at it']

Sunday, November 09, 2008

Update...

Reposting from Friday, with an update:

Boys are definitely dealing with 'something'. Potatey has morphed into the love child of Godzilla and the Tasmanian Devil (for those of you that know his full name, think Hurricane [Potatey] ...). Salamander is riding the mood roller coaster; way, way up, giddy, maniacal laughter one moment, deep down, tears streaming down his face, borderline panic attacks the next. The belly bloat is back too (yeast flare? it's possible.. personally I think methylation pathway in overdrive as the new B12 is kicking in..). He's also getting increasingly agitated over tomorrow nite's sleep study (hospital was supposed to send me an information packet to help prep Salamander; package hasn't shown up so far, so I'll be calling the Pediatric Sleep Study Center either today or tomorrow to get more information).

Intellectually I know that neither boy has any control over their behaviors right now, we just gotta ride out the storm. But man, I am TIRED of hearing "Mommieieieieie" every 30 seconds and having to jump into resolving yet another 'life or death' crisis (makes me want to scream for my 'Mommie' right now.. LOL).

On the flip side (there's always a silver lining), the way things have been here since Friday nite is how every single day used to be for many, many years... TG we're not in that spot anymore.. I guess Lady Fortuna say it fit to send me a little reminder, and a caution to never take anything for granted and to never, ever get complacent.

Well, the sun is shining today.. time to get our butts outside...

###
Well, looks like the boys and I are coming down with something...

Potatey has been sniffly and sneezy for the past 24 hours or so and now starts to sound like he swallowed a bull frog.
I am achy, sneezy and sniffly too.
Salamander is 'off'; very emotional, easily upset, slow and sluggish, agitated, and he was doing his handwringing/hand shaking thing...(gotta get him well enough to be able to do Monday nite's sleep study though).

Boys are in bed now, falling asleep (but my 'mommy sense' is telling me that they'll be up frequently during the nite). I am going to load myself up with zinc, vitamin C and any other 'immune system boasters' I can find (and then I'll try to get some sleep too...)

So if I'm not posting much this weekend, you know why....

[please, let it NOT be the flu....]

Saturday, November 08, 2008

The Boyos.. Once More


And "Well, shave me and call me a Mole Rat" * (Salamander's new fave expression when he's really surprised..), but look at what Potaeey produced on his third attempt to draw a dog (he used "Drawing Made Fun - Dogs" by Rourke Publishing as his guide):


Can you say 'Visual Motor Skills' and 'Establishment of Symbol Imagery' fully intact??




* This line is from Ice Age 2, one of the boys' favorite movies. Yes, I know, the movie uses the voice of a certain jack-ass who firmly believes that kids like Salamander are just lazy spoiled brats that need a good whack. I certainly won't buy new work of his, but I don't see why I need to punish the boys by taking movies I already own away from them....

Friday, November 07, 2008

The Other Childhood Epidemic...

I fully admit it.. I tend to (over?) focus on "autism" and the slew of medical disorders and dysfunctions you see in so many of our kids..

But another disorder/dysfunction that's near and dear to my heart is diabetes. To say that the pancreas is a weak spot in my family is an understatement; and yes, both my boys have pancreatic issues as part of their 'complex'. In addition, several dear friends have had Type I diabetes since their childhood...

This story just broke my heart...

Please, please, please.. if your child gets sick and something just doesn't seem or feel right, take them to the ER, and DO NOT LET THEM SEND YOU HOME WITHOUT A FULL WORK-UP.... Raise Holy Hell if you must, but get a CBC + electrolytes + blood glucose + blood protein levels done... (and worry about the pissing contest with your insurance company later..)

Truth Is Stranger Than Fiction ...

THIS is fictional, tongue in cheek, with a large dollop of sarcasm..

But it unfortunately is EXACTLY what happened to so many of us when we started taking our seriously ill children (who also happened to have an autism diagnosis) to mainstream practitioners....

Picture elderly pediatric GI specialist, whom I visited when Salamander was 18 months old and had completely stopped growing after his so maniest double viral pneumonia, condescendingly patting my arm, after I relayed in tears that every single time Salamander ate even a minuscule amount, he would start projectile vomiting; "My dearest mommy, your child is just trying to manipulate you, he is unhappy because you work long hours. You need to be firm with him. And I recommend that you go visit our excellent psychiatric counseling group on floor XYZ."

The gent did run the basic Celiac panel, which came back negative, and as far as he was concerned, he had done all he could do. I now know that negative Celiac panels at 18 months of age, while a child IS developing Celiac disease, are not that uncommon. The really sad part? Visiting this gent was just one of many medical avenues I pursued to help my very distressed child where I came up empty, as I could not get the medical specialists to think 'out of the box'. And Salamander wouldn't even HAVE his autism spectrum diagnosis for many more years to come AFTER this particular incident..

Thursday, November 06, 2008

Crap...

I finally caved in tonite and let myself be lured onto Facebook....
Oh boy, what HAVE I done... I can see how this can turn into another serious time waster...

Ah well, it's fun to find some old friends back..

The Boyos...



"Learning to Fly" and "I Shall Believe"

Couple of kick-butt ladies that have become very dear to me as fellow travelers on this crazy, f#cked up roller coaster we call 'life with autism" have hit a rough patch... And I am pretty powerless to do much to help (except for listening and 'just being there').

I have had my iPod on 'shuffle' since I started working earlier this morning.. Two songs struck a cord....

Hang in there, gals, hang in there....


Learning to Fly - Tom Petty & The Heartbreakers

Well I started out down a dirty road
Started out all alone
And the sun went down as I crossed the hill
The town lit up the world got still

Im learning to fly but I aint got wings
Comin down is the hardest thing

Well the good old days may not return
And the rocks might melt, and the sea may burn

Im learning to fly but I aint got wings
Comin down is the hardest thing

Well some say life will beat you down
Break your heart, steal your crown
So I started out for God knows where
But I guess Ill know when I get there

Im learning to fly around the clouds
But what goes up must come down

Im learning to fly but I aint got wings
Comin down is the hardest thing
Im learning to fly around the clouds
But what goes up must come down

Im learning to fly
Im learning to fly


I Shall Believe - Sheryl Crow

Come to me now
And lay your hands over me
Even if it's a lie
Say it will be alright
And I shall believe

I'm broken in two
And I know you're on to me
That I only come home
When I'm so all alone
But I do believe

That not everything is gonna be the way
You think it ought to be
It seems like every time I try to make it right
It all comes down on me
Please say honestly you won't give up on me
And I shall believe
And I shall believe

Open the door
And show me your face tonight
I know it's true
No one heals me like you
And you hold the key

Never again
would I turn away from you
I'm so heavy tonight
But your love is alright
And I do believe

That not everything is gonna be the way
You think it ought to be
It seems like every time I try to make it right
It all comes down on me
Please say honestly
You won't give up on me
And I shall believe
I shall believe
And I shall believe

Just for Now... (Again)

Took down my previous post as I found a much much much better one to leave you all with for the duration...

This is a letter a fellow warrior mom wrote to President Elect Obama.

Wednesday, November 05, 2008

Persistance Does Pay Off....

Well, finally, after much Round Robin-ing (not sure this is even a word..) and calling and calling and calling, Salamander's sleep study has been scheduled. We (he and I) are going in on Monday eve November 10th.

Now let the mad 'prepare Salamander' & 'make sure I have overnite coverage for Potatey' scramble begin....

The Morning After...

Well, at least we now have a shot at turning things around in this country...
But let's remember that the electoral process is only the beginning... Time to now roll up our sleeves and get to work to make all those hopes, ideas and many, many promises reality!!!!

[I have to say that the number of 'firsts' that have occurred and are occurring as part of this year's electoral process have restored my faith in the 'average Joe' a bit]

Tuesday, November 04, 2008

Today....

we are going back to CocoKey Water Park. Boys and I went there in June of this year and we had a ball... No, we're not staying over this time, we're doing a day trip.

(schools are closed all day today)

###########

The boys had an absolutely GRAND time!!!! They ran, and swam, and climbed and zipped down slides, and got dunked, and floated, and ran, and swam., and climbed and zipped down slides. .... well, you get the drift...

Their dad, after much hemming and hawing and stalling and delaying and finally being cornered by Salamander (who, in exasperation, after getting another evasive answer, said: "Dad, it [coming to the water park] is a yes or no question. I just want an answer.") decided "Well. Fine. Whatever. I'll come along then."

And realized within 15 minutes after arriving at the water park that the boys were NOT going to let him get away with parking his behind in a chair and being glued to his laptop and blackberry for the day. And grudgingly gave in and interacted with the boys for about an hour.
And then launched into his usual and oh so familiar drama to make clear how unhappy he was about being 'stuck' in the water park.

I made a conscious decision to not react, which then of course resulted in the drama being racketed up a few notches. I kept focusing on the boys, making sure they were having a good time, not responding to the ever increasing drama. When the boys dad realized that there wasn't going to be a response, he walked off and spent the next several hours sulking in the front lobby of the water park until the boys and I were ready to leave (yes, he should have taken his own car instead of riding with me/boys ...)

Whatever....

The boys didn't react much to the drama either. They simply adjusted to the fact that, once again, there was only one "adult" available to do stuff with them. Salamander ended up finding a few school/summer camp mates (amazing that they recognized each other in the mayhem and that Salamander was able to reconnect in a socially acceptable way) and spent a couple of hours running around with them, which allowed me to stay, worry free and guilt free, with Potatey.

I really really LOVE this water park. If for no other reason than that it truly shows how far Salamander has come (even 12 months ago he wouldn't have lasted more than 15 minutes in an environment like this). It's so nice to be able to do 'typical family stuff' with the boys and not have to worry every second when the 'autism torpedo' is going to blow up the plans.

[Now obviously there was another torpedo in play yesterday, but I'm getting pretty good at minimizing the chances for that factor to enter the game, and, if it DOES enter, at defusing it...But really, isn't it sad that my 10.5 year old with substantial neurological challenges has become more "mature" in managing his behaviors and responses (and is doing a bang-up job at using his various coping strategies when he does get overwhelmed) than his father??]

Monday, November 03, 2008

Loco...

Anybody else's kids acting like Tasmanian Devils on a case of Red Bull this morning???

Both were up BEFORE their alarm clocks even went off (#$!@$!#@$ time change), and have been running around like mad ever since.
Getting them TO the bus stop was like herding cats.. both of them flying off in different directions.
Then, as Potatey climbed into school bus, he tripped and did a face plant in the isle (he's OK.. that one is tough). Salamander, being single mindedly focused on getting to his friends and classmates at the BACK of the bus, stomped right over Potatey as he was laying face down in the isle (as I said, Potatey's OK, he's tough - he DID direct a few 'choice words' at Salamander .. which earned me THE STARE from the bus driver....).

Oy...

I DO feel for their teachers today.. Hopefully they'll get 'it' out of their systems during the bus ride.

Off to get ready for spending most of the day at a client site..

Sunday, November 02, 2008

Essential Reading....

Go HERE

(I've lived through quite a bit of the AIDS/HIV/Blood donors/Hemophiliacs scandal...and it taught me that money (or fear of loosing money) trumps EVERYTHING... and yes, it also left me quite jaded and cynical..)

Happy Salamander....

So while yesterday's Halloween Party did not go so well (although there is a BIG silver lining that I'll write about later), attending another Halloween event went very well.
I have several pictures of Salamander "horsing" (Ninja-ing??) around with FRIENDS at a school Halloween party (real friends, not just class mates or school mates), which I cannot post for privacy reasons.
I do, however, have one picture of Salamander that I CAN post. I'll let that pic do the talking ("Pay close attention to the sparkle in this young man's eyes....")

Insert Trumpet Fanfare...

Boys got back at 1.45 pm. They were gone for 3 hours, and, per their dad, walked about 4 to 5 miles. Oy.... little more than I would have liked, and it certainly explains why Salamander looked ready to collapse and why Potatey was crying...

#######

PINCH ME AGAIN.. 2 hours and 25 minutes have passed, and no sign of the boyos yet. I have gotten a ton of stuff done so far ...

#####

Pinch me.. might I be dreaming?????

The boys' dad just took BOTH boys for a hike at one of the local nature preserves (hence the trumpet fanfare). Let's just hope my suggestions to not go beyond 1 - 1 5 miles (as Salamander definitely has mito issues) have registered...[as if not, I'll be replacing the trumpet fanfare with ominous drum rolls in a few hours.. ]

Regardless, if I am reading "the signs" right, this news worthy occurrence will leave me with about 1.5 to 2 hours of "alone" time. So off I go on a mad rampage to get stuff done (cooking, doing laundry, bill paying, supplement preparing, supplement reordering, IEP reviewing, cleaning, etc etc etc ...).

Oh, you thought I'd be using that time to take a nice long shower, or to sit on my butt for a while?
Nah.. If I get stuff done now, while the boyos are away, then maybe, just maybe, I get to chill for a bit tonite after they are in bed...

Latah..(yes, yes, I need to post the 'so what happened yesterday at that party' story.. but that will take more time than I have right now..)

Saturday, November 01, 2008

That Did Not Go Well..

This afternoon's Halloween party that is... We lasted a grand total of 15 minutes before we needed to exit; Salamander completely imploded and then shut down.

I knew I was taking a chance even going to the party, but for Potatey's sake I had to try. Yes, Potatey was disappointed about having to leave too, but, wonderful caring kiddo that he is, he understood that it was all too much for Salamander and that it would be better for all parties involved to just go home for some quiet time.

I'll post more about the how and what later..

[oh, and trust me, inside I am not nearly as calm as I sound here.. I am sad... for Salamander because things became so hard for him, and for Potatey as he's missing out on a social event that he would have very much enjoyed..]

Yesterday's Haunting..

As said, we had a GRAND time.

Things DID get extremely chaotic between 5 pm and 6 pm (as I had pretty much expected, somebody who had promised the boyos that he would participate "had something come up last minute".. whatever), so I was only able to get ONE pic of the boyos in their costumes before they 'absolutely, can't wait any longer, have to go NOW' ran off to plunder the neighborhood.

One trick I've learned over the years is that the boys MUST have a decent meal in their stomachs BEFORE we go out haunting. But how do you get two very excited, can't sit still, have major league Halloween Ants-In-The-Pants kiddos to actually eat something?

You feed them "Monster Food"....